Newsletter: Finish Line Edition

Over the past several years, runners, walkers, families, friends, and supporters have laced up their shoes to raise awareness and funds for Phelan-McDermid syndrome research. From 5Ks to half marathons, full marathons to extraordinary endurance challenges, these events have helped carry CureSHANK's mission forward, one mile at a time.

In 2026, our running community raised more than $60,000 for PMS research. In 2027, we're setting our sights on raising $100,000 to help accelerate progress toward treatments.

This special edition celebrates the people behind those miles, offers training tools, and shares ways you can join us for the next starting line.

Get the full story here.

Learn more about how to get involved and support Team CureSHANK!