Jackson’s Trivia Night was started seven years ago by Melissa McGrew and Todd Goldsmith, the loving and amazing parents of Jackson, who suffers with Phelan-McDermid syndrome.

My name is Nathan, and this year, an amazing group of my friends and I are starting Team CureSHANK to take on the Houston Marathon and Half Marathon for my older brother Charles, who has Phelan-McDermid syndrome. Growing up alongside Charles as he endured uncontrollable seizures and regression of his speech and other abilities has been heartbreaking. However, his incredible resilience has inspired myself and many others, and now, we’re stepping up to Race for Charles.

I am Running for Cam in an effort to raise funds to support CureSHANK, a research advocacty organization expediting life-changing therapies for Phelan-McDermid syndrome (PMS), a highly disabling neurodevelopmental disorder. This unfortunate condition puts a lot of stress on my girlfriend’s family and to be able to raise money to help Cam and his Blippi-loving self is my aspiration! Cam loves strings and his smile shines bright. Being able to run a half marathon is a gift and I’d love to make a change while I’m doing it. Let’s lace up together to make Cam’s journey a little brighter! #runningforcam

CureSHANK is honored to be the beneficiary of the 2024 Running with a Heart Sugar Land Rotary 5k! This fundraiser will occur near Houston, TX on February 3, 2024.